My Life with Ehlers-Danlos Syndrome, Part 2

Bringing a new perspective to Peer Health, Sabriyah Shahbandy has shared with us her experience with Ehlers-Danlos Syndrome. Her pervious post, My Life with Ehlers-Danlos Syndrome, Part 1, gave some background to herself and the condition. Today, she shares what it truly means to live with Ehlers-Danlos. Today, I’m 20 years old and EDS pretty much runs my…

My Life with Ehlers-Danlos Syndrome, Part 1

I feel like I’m constantly about to come apart at the hinges. It’s too much for my brain to handle sometimes. Ehlers-Danlos Syndrome (EDS) is a collection of connective tissue disorders in which the body’s supply of collagen, a protein that holds tissues together, is defective in some way. It has too much laxity, causing…

Top 5 Books for Chronic Illness Sufferers

Among our good days, we all have to suffer through a few bad days. One morning, you may wake up and find that your symptoms are particularly tough or you’re too tired to get out of bed. A new treatment option may make you feel like you’ve been herxing with The Rock. On these days, all…